$Unique_ID{PAR00501} $Pretitle{} $Title{Additional Resources} $Subtitle{} $Author{} $Subject{Resource Resources organization organizations group groups association associations information} $Log{} Additional Resources Abortion (Pro-Choice) National Abortion Federation 1436 U Street, N.W., Suite 103 Washington, D.C. 20009 800-772-9100, 202-667-5881 Organization of abortion service providers such as doctors, clinics, and women's health standards who set standards & guidelines; provides information, makes referral, publishes professional and public materials including Consumer's Guide to Abortion Services. National Abortion Rights Action League 1101 14th Street, N.W., 5th Floor Washington, D.C. 20005 202-371-0779, 202-408-4600 Organization seeking to retain rights to legal abortion, educate the public and influence government policy; publishes newsletter. Religious Coalition for Abortion Rights 100 Maryland Avenue, N.E. Washington, D.C. 20002 202-543-7032 Organization of religious groups seeking to continue legal right to abortion, educate the public and influence government policy. Publishes materials including a quarterly newsletter and fact sheets. Abortion (Pro-Life) Americans United for Life 343 South Dearborn, Suite 1804 Chicago, IL 60604 312-786-9494 Organization devoted to protecting life, and opposing abortion and euthanasia. Supports Legal Defense Fund, maintains library, publishes various materials. Birthright 686 North Broad Street Woodbury, N.J. 08096 609-848-1818, Abortion Alternative Hotline 800-848-5683 Network of independently operating, interdenominational groups devoted to providing alternatives to pregnant women other than abortion. Offer classes, telephone hotline, and various printed materials. National Right to Life Committee 419 Seventh Street, N.W., Suite 500 Washington, D.C. 20004 202-626-8800 Organization opposing abortion and euthanasia seeking to educate the public and influence legislation. Gather data, maintain a library, offers referrals and publish National Right to Life News and the pamphlet, "Challenge to Be Pro-Life". Adolescent Parenting National Organization of Adolescent Pregnancy and Parenting P.O. Box 2365 Reston, VA 22090 703-435-3948 Organization that aims to strengthen services to adolescent parents and their children; seeks to influence legislation, and publishes various materials including the Directory of Adolescent Pregnancy and Parenting Programs. Adoption Aid to Adoption of Special Kids 450 Sansome Street San Francisco, CA 94111 800-232-2751, 415-434-2275 Network of non-profit adoption agencies focusing on adoption of children in the public welfare system. Americans for International Aid and Adoption 1370 Murdock Road Marietta, GA 30062 404-973-5909 Organization interested in aiding children abroad; assists families where appropriate or arranges for adoptions; publishes newsletter. Child Welfare League of America 440 First Street, N.W., Suite 310 Washington, D.C. 20001-2085 202-639-2952, 202-638-2952 Organization interested in raising the level of care for children. Provides information and referrals, does research, maintains library, seeks to influence legislation, and publishes newsletter and other materials. Families Adopting Children Everywhere P.O. Box 28058, Northwood Station Baltimore, MD 21239 301-256-0410, 301-488-2656 Organization for people and agencies involved in adoption that provides support and information, conducts research, seeks to influence legislation, and publishes a newsletter and other materials. National Adoption Exchange 1218 Chestnut Street, Suite 204 Philadelphia, PA 19107 215-925-0200 An adoption referral service for hard-to-place children, including older, handicapped or minority children. Operates National Adoption Center, maintains library, publishes newsletter, videotapes and other materials. North American Adoption Congress P.O. Box 44040, L'Enfant Station Washington, D.C. 20026 206-481-6471 Organization that works as a clearinghouse for adoptees, adoptive and birth parents, and adoption professionals; serves as a referral service, and publishes various materials. North American Council on Adoptable Children, Inc. 1810 University Avenue, Suite S-275 St. Paul, MN 55104 612-644-3036 Organization for groups of adoptive parents and adoption professionals. Clearinghouse for information, holds seminars and programs, publishes newsletter and other materials. National Committee for Adoption 1930 Seventeenth Street, N.W. Washington, D.C. 20009-6207 202-328-1200, Hotline 202-328-8072 Organization for adoptees, adoptive and birth parents, and adoption professionals; seeks to influence legislation, maintains a library and conducts research, publishes materials for professionals and the public. Organization for United Response 3307 Highway 100 North, Suite 203 Minneapolis, MN 55422 612-535-4829 Organization of adoptive parents that publishes various materials, including bimonthly magazine. Affective Disorders Anxiety Disorders Association of America 6000 Executive Boulevard, Suite 200 Rockville, MD 20852-3883 301-231-9350 Organization for anxiety disorder patients, their families, and medical professionals involved in their treatment. Supports self-help groups, seeks to educate public, acts as information clearinghouse. Publishes various print and audiovisual materials. Depression After Delivery P.O. Box 1282 Morrisville, PA 19067 215-295-3994 Organization aimed for women suffering from postpartum depression. Serves as a information clearinghouse. Depression and Related Affective Disorders Association Johns Hopkins Hospital, Meyer 4-181 1601 North Wolfe Street Baltimore, MD 21205 301-987-5756, 301-955-4647 Association for patients and their families who are concerned about clinical and manic depression. Offers educational programs, support services and treatment, and supports research. Publishes quarterly newsletter and various other materials. AIDS/HIV Foundation for Children with AIDS 77 B Warren Street Brighton, MA 02135 617-783-7300 Foundation dedicated to assist parents of children with AIDS. Offers information and referrals. National Pediatric HIV Resource Center Children's Hospital of New Jersey 15 South 9th Street Newark, NJ 07107 201-268-8251 The Resource Center provides information and referrals to families who have children with the HIV virus. Alcoholism Mothers Against Drunk Driving (MADD) 511 East John Carpenter Freeway Irving, TX 75062 214-744-MADD (6233) National organization consisting of families of drunk-driving victims and interested others dedicated to promoting public awareness that driving under the influence is a criminal demeanor. Seeks to educate public and influence government agencies, supports and encourages support groups, maintains library. Publishes newsletter and various other materials. National Association for Children of Alcoholics 31706 Coast Highway, Suite 201 South Laguna, Ca 92677 714-499-3889 Organization of professionals helping children of alcoholics. Serves as an information clearinghouse, provides referrals for children needing treatment, aims to strengthen social services for the children of alcoholics. Publishes newsletter and various other materials. Asthma and Allergy Asthma and Allergy Foundation of America 1717 Massachusetts Avenue, Suite 305 Washington, DC 20036 202-265-0265 Organization of people concerned with, and interested in, allergy and asthma. Provides information, supports research, seeks to educate public. Publishes a bimonthly newspaper. Autism Institute for Child Behavior Research 4182 Adams Avenue San Diego, CA 92116 714-281-7165 Information Clearinghouse for treatment of autism and other learning and behavior problems. Provides counseling and makes referrals. Publishes quarterly newsletter and various other materials. Birth Defects Association of Birth Defect Children 3526 Emerywood Lane Orlando, FL 32806 305-859-2821 Organization seeking to prevent birth defects. Gathers and disseminates information, offers support to families, seeks to educate the public and influence government policy. Publishes quarterly newsletter. March of Dimes Birth Defects Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 914-428-7100 Organization dedicated to preventing and treating birth defects. Provides information and referrals, educational programs on maternal and newborn health, counseling through local chapters. Publishes numerous print and audiovisual materials, including booklets for children and information sheets. Brain Tumors Brain Tumor Foundation for Children 751 DeKalb Industrial Way Decatur, GA 30033 414-292-3536 Organization responsible for sponsoring local support groups. Publishes newsletter for parents of children with brain tumors. Breast-Feeding Human Lactation Center 666 Sturges Highway Westport, CT 06880 Center conducts research, provides consultation for mothers, and promotes education on breastfeeding and its effects. It maintains a library, publishes books, and a monthly journal, Lactation Review. La Leche League International 9616 Minneapolis Avenue P.O. Box 1209 Franklin Park, IL 60131-8209 708-455-7730, 800-525-3243 International network of women dedicated to promoting and supporting breast-feeding. Provides training, encourages local support groups, maintains libraries and resource centers, operates telephone reference service. Publishes various materials. Burn Victims National Burn Victim Foundation 308 Main Street Orange, NJ 07050 201-731-3112 National foundation dedicated to assisting burn victims. Encourages and supports self-help groups and educational programs, offers counseling and special programs for burned children. Seeks to educate public of burn victim needs. Cancer American Cancer Society 1599 Clifton Road, N.E. Atlanta, GA 30329 800-227-2345, 404-320-3333 Sponsors research, education programs, and support services to cancer patients and their families. Publishes newsletter, numerous print and audiovisual materials. Candlelighters Childhood Cancer Foundation 1901 Pennsylvania Avenue, N.W., Suite 1011 Washington, DC 20006 202-659-5136 The foundation offers support and counseling to children who have cancer and their families. Provides information on childhood cancer, publishes quarterly newsletter and various materials. National Cancer Institute Office of Cancer Communications 9000 Rockville Pike Building 31, Room 10A30 Bethesda, MD 20892 800-4-CANCER, 301-496-5583 National institute concerned with cancer research and public policy regarding cancer. Gathers and disseminates data, provides information to public and professionals, maintains information on experimental treatments currently being funded. Publishes numerous print and audiovisual materials. Cardiovascular Disease American Heart Association 7320 Greenville Avenue Dallas, TX 75231 214-706-1179 Organization of individuals affected by heart disease, health professionals and interested others. Provides information, seeks to educate public, offers services to heart patients and their families, and encourages mutual-support groups. Publishes various print and audiovisual materials. Council on Cardiovascular Disease in the Young American Heart Association National Center 7320 Greenville Avenue Dallas TX 75231 214-373-6300 Organization concerned with reducing the incidence of mortality and disability among children with cardiovascular disease. Encourages research and seeks to educate public. Publishes various materials. Cerebral Palsy United Cerebral Palsy Association, Inc. 7 Penn Plaza, Suite 804 New York, NY 10001 800-872-1827, 212-268-6655 Organization offering services to people with cerebral palsy and related handicaps. Provides support services, information and referrals. Acts as advocate, seeks to educate public and change public policy. Sponsors research and the National Association of Sports for Cerebral Palsy. Publishes various materials, monograms, and books on communication devices available for people with cerebral palsy. Child Abuse American Association for Protecting Children c/o American Humane Association 9725 E. Hampden Avenue Denver, CO 80231 800-227-5242, 303-695-0811 Organization responsible for operating the National Resource Center on Child Abuse and Neglect, provides information and referral services. Childhelp U.S.A., Inc. 6463 Independence Avenue Woodland Hills, CA 91370 800-422-4453, 818-347-7280 Organization responsible for operating the National Child Abuse Hotline. Offers intervention and counseling, makes referrals, sponsors research, and seeks to educate public. Publishes various materials. SHARE, Inc. P.O. Box 1342 Beverly Hills, CA 90213 213-274-5361 Organization offering special programs for mentally retarded and abused children. Funds diagnostic and counseling center, sponsors fund-raising events, and conducts educational programs for infants to school-age children. Child Advocacy Children's Defense Fund 122 C Street, N.W., Suite 400 Washington, DC 20001 202-682-8787 Organization that works as an advocate for children and their rights. Conducts research, provides information service, supports local community groups, and seeks to influence public policy and legislation. Publishes newsletter and various other materials. Childbirth and Delivery Cesareans/Support, Education and Concern (C/SEC) 22 Forest Road Framingham, MA 01701 508-877-8266 Organization concerned with cesarean deliveries and preventing unnecessary cesareans. Offers information on cesarean delivery, makes referrals, and encourages mutual-support groups. Publishes newsletter and various other materials. Childbirth Education Foundation P.O. Box 5 Richboro, PA 18954 215-357-2792 Foundation primarily concerned with promoting alternatives to traditional hospital births. Provides advice and information on birthing centers, certified nurse-midwives, and other similar alternatives. Publishes various print and audiovisual materials. International Association for Childbirth at Home c/o Childbirth Center P.O. Box 430 Glendale, CA 91209 213-663-4996 Association of medical professionals providing information, educational programs, and referrals to individuals who desire home childbirths. International Childbirth Education Association P.O. Box 20048 Minneapolis, MN 55420 612-854-8660 Organization aimed at answering questions and making referrals regarding childbirth and breast-feeding. Publishes various print and audiovisual materials. Maternity Center Association 48 East 92nd Street New York, NY 10128 215-369-7300 Organization of midwives and medical professionals devoted to improving maternity care. Provide information and education; sponsors research. Publishes quarterly newsletter and various other materials including Preparation for Childbearing and Newborn Needs. National Center for Education in Child and Maternal Health 38th and R Streets, N.W. Washington, DC 20057 202-625-8400 An educational center providing information to the public and professionals about pregnancy, childbirth, genetic diseases, nutrition, and maternal health. Encourages parent support-groups, publishes various materials. Cleft Lip & Palate American Cleft Palate Association 1218 Grandview Avenue Pittsburgh, PA 15211 800-242-5338 Association educating patients and their families about sources of treatment and support for those with cleft palate. Sponsors the National Cleft Palate Association aimed for the parents of children with cleft lip or palate. Publishes newsletter and various other materials. Prescription Parents, Inc. P.O. Box 426 West Roxbury, MA 02132 617/527-0878 Organization providing support and assistance to parents of children with cleft lip or plate. Encourages parent support groups. Publishes newsletter and various other materials. Colostomy, Ileostomy, or Urostomy United Ostomy Association 2001 West Beverly Boulevard Los Angeles, CA 90057 213-413-5510 Organization interested in aiding people who have had colostomy, ileostomy, or urostomy and for their families. Encourages mutual-support groups, provides information and referrals, publishes various materials. Cornelia de Lange Syndrome Cornelia de Lange Syndrome Foundation 60 Dyer Avenue Collinsville, CT 06022 800-223-8355, 203-693-0159 Organization aimed for individuals having Cornelia de Lange syndrome. Provides information to public and medical professionals, counsels families, and publishes bimonthly newsletter and various other materials. Cystic Fibrosis Cystic Fibrosis Foundation 6931 Arlington Road, Room 200 Bethesda, MD 20814 800-344-4823, 301-951-4422 Organization offering support services and referrals to cystic fibrosis patients and their families. Funds research and the Cystic Fibrosis Medical Centers. Publishes quarterly newsletters and various other materials. Dentistry for Children American Society of Dentistry for Children 211 East Chicago Avenue, Suite 1430 Chicago, IL 60611 312-943-1244 Organization of dental professionals specialized in children's dentistry. Sponsors research; publishes newsletter and various other materials. Diabetes American Diabetes Association 1660 Duke Street P.O. Box 25757 Alexandria, VA 22314 800-232-3472, 703-549-1500 Organization aimed to improve the well-being of individuals with diabetes and their families. Provides information and services through local affiliates. Publishes various materials including specially published booklets for children. Juvenile Diabetes Foundation International 432 Park Avenue South, 16th Floor New York, NY 10016 800-223-1138, 212-889-7575 Organization supporting parents and their diabetic children. Provides information and services through local chapters, funds research, and publishes quarterly newsletter and various other materials. Digestive Disease American Digestive Disease Society 7720 Wisconsin Avenue Bethesda, MD 20814 301-223-0179 Organization of medical professionals offering referrals and education regarding digestive diseases. Provides information and counseling. Publishes various materials. National Digestive Disease Information Clearinghouse 9000 Rockville Pike Box NDDIC Bethesda, MD 20892 301-468-6344 Federally funded clearinghouse providing information and referral services on digestive diseases. Publishes brochures and various other materials. Disabilities Center on Human Policy Syracuse University 724 Comstock Avenue Syracuse, NY 13244-4230 315-443-3851 Organization of individuals devoted to working with handicapped people, autistic and bilingual disabled children in educational, vocational, and residential services. Provide information on rights, laws, regulations, and special programs related to the handicapped; serves as an information clearinghouse; seeks to influence legislation and public policy. Publishes various materials. National Easter Seal Society 70 East Lake Street Chicago, IL 60601 800-221-6827, 312-726-6200 (Voice), 312-726-4258 (TDD) Network of societies aiding people with disabilities, providing information about disabilities and services available to the handicapped. Operates local rehabilitation centers, seeks to educate public and influence legislation and public policy, makes referrals. Publishes quarterly newsletter and various other materials. National Information Center for Children and Youth with Handicaps P.O. Box 1492 Washington, DC 20013 800-999-5599, 703-893-6061 Organization devoted to assisting parents with disabled children. Offers counseling and support, provides information of education and special services available to handicapped children, aids parents in dealing with public and private agencies. Publishes various materials. Down Syndrome Association for Children with Down Syndrome, Inc. 2616 Martin Avenue Bellmore, NY 11710 516-221-4700 Organization aimed at assisting children, preschool through youth, with Down Syndrome. Supports special social, recreational, and educational programs; seeks to educate public and influence public policy. Publishes bimonthly newsletter and various materials. Down's Syndrome International 11 North 73rd Terrace, Room K Kansas City, KS 66111 913-299-0815 Organization aimed for parents of children with Down syndrome. Promotes support and counseling among parents, funds research, and referral services. National Association for Down's Syndrome P.O. Box 4542 Oak Brook, IL 60521 708-325-9112 Organization devoted to enhancing the lives of people with Down's syndrome. Offers counseling and support to families, seeks to educate and provide information to the public and professionals, and encourages research. Publishes bimonthly newsletter and various other materials. National Down Syndrome Congress 1800 Dempster Street Park Ridge, IL 60068-1146 312-823-7550 The Congress serves as a clearinghouse for Down Syndrome information and makes referrals to local chapters and resources. Provides support and counseling for parents of children with Down's syndrome. Promotes enhancing the dignity and personal horizons of people with Down's syndrome. National Down Syndrome Society 666 Broadway New York, NY 10012 800-221-4602, 212-460-9330 Organization providing services for families and individuals with Down Syndrome. Publishes biannual newsletter and various materials. Education American Montessori Society 150 Fifth Avenue, Suite 203 New York, NY 10011 212-924-3209 Organization of individuals interested in the Montessori's method of teaching. Establishes educational standards, provides information and referrals, assists in setting up new schools and offering accreditation, maintains library. Publishes quarterly magazine and various other materials. Association for Childhood Education International 11141 Georgia Avenue, Suite 200 Wheaton, MD 20902 800-423-3563, 301-942-2443 Organization of individuals dedicated to promoting equal educational opportunity for all children. Seeks to enhance children's rights, encourages continuous training for educators, strives to enhance children's materials. Publishes various materials. Council for American Private Education 1625 I Street N.W., Suite 412 Washington, DC 20006 202-659-0016 Organization involved with private school education, educating public and influencing government policy. Publishes newsletter and various other materials. Council for Exceptional Children 1920 Association Drive Reston, VA 22091 703-620-3660 Organization providing educational, informational, and support services for people concerned with the education of exceptional children. Seek to educate public, maintains information center, influences legislation and public policy, supports research and increase the services for special need individuals. Publishes various materials. National Association for the Education of Young Children 1834 Connecticut Avenue, N.W. Washington, DC 20009 800-424-2460, 202-232-8777 Organization devoted to high-quality education and activities for children. Grants accreditation for early childhood educators, seeks to educate public and influence public policy, offers referrals regarding educational services and resources. Publishes bimonthly magazine and various other print and audiovisual materials. National Association for Year-Round Education 6401 Linda Vista Road P.O. Box 11386 San Diego, CA 92111 619-276-5296 Organization of individuals devoted to improving the quality of education and use of school facilities more efficiently by supporting year-round education. Serves as an information clearinghouse; maintains library; publishes various materials. National Association of Private Schools for Exceptional Children 2021 K Street, NW, Suite 315 Washington, DC 20006 202-296-1800 Organization of private schools devoted to offering special programs for children with special needs. Provide information and referrals; publishes directory of private schools involved in the program. National Committee for Citizens in Education 10840 Little Patuxent Parkway, Suite 301 Columbia, MD 21044 800-638-9675, 301-997-9300 Organization consisting of parents and interested others devoted to increasing parent and community participation in education. Conducts research, acts as information clearinghouse, operates toll-free number for information and advice about public school education, offers special programs for single parents and their children. Publishes various print and audiovisual materials. National Congress of Parents and Teachers 700 North Rush Street Chicago, IL 60611 312-787-0977 Organization consisting of parents, teachers, students, school administrators, and others dedicated to improving education, health, and safety of children. Acts as advocate for children's interests; educates public and influence public policy and legislation. Publishes newsletter and various other materials. National Head Start Association 1220 King Street, Suite 200 Alexandria, VA 22314 703-739-0875 Federally funded, locally operated program that provides pre-kindergarten educational opportunities. Provides seminars and training in early childhood education; publishes quarterly newsletter and various other materials. Parent Cooperative Pre-Schools International P.O. Box 90410 Indianapolis, IN 46290 317-849-0992 Organization involved with parent-run, non-profit cooperative nursery centers and preschools. Counsels and provides information to cooperatives, makes referrals, serves as an information clearinghouse. Publishes newsletter and various other materials. Reading Is Fundamental 600 Maryland Avenue, S.W., Suite 500 Washington, DC 20560 202-287-3220 Organization dedicated to interest children, preschool through high school, in reading. Provides services to parents on encouraging home reading and giving the child the sense of personal choice and ownership of books. Publishes quarterly newsletter and various other materials. Endometriosis Endometriosis Association P.O. Box 92187 Milwaukee, WI 53202 800-992-3636, 414-962-8972 Organization concerned about endometriosis and its role in infertility. Provides information and referrals. Publishes newsletter and various other materials. Epilepsy Epilepsy Foundation of America 4351 Garden City Drive Landover, MD 20785 800-332-1000, 301-459-3700 Organization concerned with preventing and controlling epilepsy and improving lives of people affected. Seeks to educate public and act as advocate to influence social policy; provides information and referrals, maintains National Library and Resource Center on Epilepsy. Publishes newsletter and various other materials. Family Planning National Family Planning and Reproductive Health Association 122 C Street, NW, Suite 380 Washington, DC 20001 202-628-3535 Organization concerned with family planning and reproductive health. Seeks to influence public policy and acts as advocate; publishes various materials. Planned Parenthood Federation of America 810 Seventh Avenue New York, NY 10019 212-541-7800 Organization aimed at providing and distributing information about, and access to, the full range of birth-control methods available. Sponsors research and disseminates knowledge about family planning and reproduction. Operates nationwide network of centers providing education, services, and publishes various materials. Family Services Big Brothers and Big Sisters of America 230 North 13th Street Philadelphia, PA 19108 215-567-7000 Network of local agencies providing an adult friend for school age children of single-parent households. Provides counseling and referrals; publishes newsletter and various other materials. Center for Surrogate Parenting 8383 Wilshire Boulevard, Suite 750 Beverly Hills, Ca 90211 213-655-1974 Organization of professionals assisting couples in arranging surrogate parenting. Seeks to influence public policy and legislation, gathers and disseminates information, provides finalizing of adoption. Publishes various materials. Institute for Childhood Resources 210 Columbus Avenue, #611 San Francisco, CA 94133 415-864-1169 Organization of individuals concerned with the development of children. Aims to educate parents on development, education, parenting, and child care of children. Maintains library and publishes various materials. Family Resource Coalition 230 North Michigan Avenue, Suite 1625 Chicago, IL 60601 312-726-4750 Organization consisting of local family-support groups seeking to strengthen the family. Serves as an information clearinghouse for family resource programs; seeks to influence public policy and legislation related to families and child development. Publishes various materials. Family Service Association of America 11700 West Lake Park Drive Milwaukee, WI 53224 414-359-2111 Network of community-based agencies devoted to educating families, enhancing their social and mental health, and representing them in the community. Maintains library and publishes various materials. Fatherhood Project 610 West 12th Street New York, NY 10025 212-222-6700 National clearinghouse providing information on father participation programs. Encourages fathers' participation in raising children, provides information and referrals, conducts research and maintains library. Gay and Lesbian Parents Coalition International Box 50360 Washington, DC 20004 703-548-3238 Organization for homosexual parents. Provides network of mutual-support groups, seeks to influence public policy and legislation of rights of homosexual parents. Publishes newsletter and various other materials. Grandparents'-Children's Right, Inc. 5728 Bayonne Avenue Haslett, MI 48840 517-339-8663 Organization concerned with protecting the rights and relationship between children and their grandparents. Aimed to protect grandparents' visitation rights, serves as clearinghouse for information, and seeks to influence public policy and legislation. Interracial Family Alliance P.O. Box 16248 Houston, TX 77222 713-454-5018 Organization for interracial families. Provides special support to the biracial children, encourages public acceptance of interracial families, maintains library and network listing of interracial family organizations. Publishes various materials. National Center for Clinical Infant Programs 2000 14th Street North, Suite 380 Arlington, VA 22201-2500 703-528-4300 Organization of individuals seeking to improve the care of infants and young children under the age of three and their families. Publishes various materials. National Foster Parent Association 226 Kilts Drive Houston, TX 77024 713-467-1850 National association dedicated to enhancing the care of children in foster homes. Offers information for foster parents; publishes various materials. Parents Choice Foundation P.O. Box 185 Waban, MA 02168 617-965-5913 Organization that is devoted to providing parents and educators information on children books, television programs, games, toys, movies, records, videos, and computer software. Publishes quarterly newsletter. Parents Without Partners 8807 Colesville Road Silver Spring, MD 20910 800-637-7974, 301-588-9354 Organization providing information and support services to anyone raising children alone. Gathers information on single parenting and maintains library, serves as an information clearinghouse. Publishes various materials. Sibling Information Network 991 Main Street East Hartford, CT 06108 203-282-7050 Organization of individuals concerned with the needs of siblings of disabled people. Gathers information, conducts research, offers referrals, serves as a information clearinghouse. Publishes information newsletter. Single Mothers by Choice Gracie Square Station P.O. Box 1642 New York, NY 10028 212-988-0993 National network supporting women who choose to have a child outside of a permanent relationship. Encourages and supports local chapters; publishes newsletter and other various materials. Stepfamily Association of America, Inc. 602 East Joppa Road Baltimore, MD 21204 301-823-7570 Network acting as a resource and advocate for stepfamilies and interested others. Aims to enhance stepfamily relationships, offers referral services, and publishes various materials. Fertility American Fertility Society 2140 11th Avenue South, Suite 200 Birmingham, AL 35205 205-978-5000 Organization that works as a clearinghouse on fertility and infertility. Provides information and referrals. Publishes monthly journal and various other materials. RESOLVE, Inc. 1310 Broadway, Department DM Somerville, MA 02144-1731 617-623-0744 National self-help group for infertile couples. Makes referrals, provides counseling, distributes adoption information, and gives emotional support. Publishes newsletter and various other materials. Food, Drugs & Pharmaceuticals Dissatisfied Parents Together 128 Branch Road Vienna, VA 22180 703-938-3783 Organization made up of parents whose children have had adverse reactions to vaccines, primarily the DPT vaccine. Provides information and makes referrals, publishes various materials. Food and Drug Administration U.S. Department of Health and Human Services Office of Consumer Affairs 5600 Fishers Lane Rockville, MD 20857 301-443-3170 Federal department responsible for answering consumers' questions and inquires concerning foods, drugs, and pharmaceutical. Provides information on food labels and additives. Human Nutrition Information Center U.S. Department of Agriculture 6505 Belcrest Road Hyattsville, MD 20782 301-436-8498 The center conducts surveys on food consumption and management, publishes data on the nutritive content of food and provides information needed to improve the nutritional quality of American diets. Sponsors research jointly with the Department of Health and Human Services. Gifted Children American Association for Gifted Children c/o Talent Identification Program 10 West Duke Building Duke University Durham, NC 27706 919-684-3847 Organization to assist gifted children in developing their talent and utilize their gifts in helping others. Publishes various materials. The Association for the Gifted (TAG) P.O. Box 115 Sewell, NJ 08080 212-319-9220 Organization of parents and educators working with gifted children. Establishes educational programs; publishes various materials. Gifted Child Society 190 Rock Road Glen Rock, NJ 07452 201-444-6530 The Society assists parents in raising gifted children, serves as an advocate for special needs of gifted children, sponsors workshop programs, special preschool programs, and programs for multiethnic gifted children. Provides clinical support services; encourages formation of parent discussion groups. Publishes semiannual newsletter and various other materials. National Association for Gifted Children 4175 Lovell Road, Suite 140 Circle Pines, MN 55014 612-784-344475 National association seeking to develop special programs for the gifted to fulfill their potential. Provides information to parents and professionals, publishes quarterly newsletter and various other materials. Growth Problems Human Growth Foundation P.O. Box 3090 Falls Church, VA 22043 800-451-6434, 703-883-1773 Organization of families for children who suffer from growth problems. Gathers and disseminates information to public and professionals; supports research. Publishes monthly and quarterly publications along with various other materials. Little People of America P.O. Box 633 San Bruno, CA 94066 415-589-0695 Organization dedicated to helping people of short stature and their families. Aims to provide mutual support and understanding, works through agencies to arrange for adoption of dwarf children, encourages and cooperates in medical research. Publishes newsletter and various other materials. Health & Fitness Healthy Mother, Healthy Babies National Coalition 409 12th Street, S.W. Washington, DC 20024-2188 800-533-8811, 202-863-2458 Organization of networks interested in educating pregnant women on maternal and child health. Serves as an information clearinghouse. Publishes quarterly newsletter and various other materials. Positive Pregnancy and Parenting Fitness 51 Salrock Road Baltic, CT 06330 800-433-8573, 203-822-8573 Organization seeking to train and educate pregnant women and new mothers on exercise, stress management, and parenting. Publishes newsletter and provides mail-order catalogs. Hearing & Speech Alexander Graham Bell Association for the Deaf 3417 Volta Place, NW Washington, DC 20007 202-337-5220 Organization aimed to improve the well-being of individuals with hearing disorders. Serves as an information clearinghouse for public and professionals on any hearing problem. Publishes various materials. American Society of Deaf Children 814 Thayer Street Silver Spring, MD 20910 301-585-5400 Organization providing information and support to deaf and hearing-impaired children. Encourages formation of self-help groups, offers special program for new parents of deaf children, maintains library and disseminates information relating to families with deaf children. Publishes bimonthly newsletter and various other materials. Children of Deaf Adults Box 30715 Santa Barbara, CA 93130 805-682-0997 Organization acting as a support group for hearing children of deaf parents. Encourages sharing of experience; seeks to act as advocate for the hearing-impaired. Publishes quarterly newsletter and other materials. House Ear Institute 256 South Lake Street Los Angeles, CA 90057 213-483-4431, 213-484-2642 (Telecommunication Device for the Deaf) Organization focused on the research and development of new approaches to ear and hearing disorders. Operates center for deaf children, manages support groups for parents of deaf children, trains and updates medical professionals, and maintains library. Publishes quarterly newsletter and various other materials. National Association for Hearing and Speech Action 10801 Rockville Pike Rockville, MD 20852 800-638-8255, 301-897-8682 Organization aimed to provide information and referral services to individuals with communication disorders. Publishes newsletter and various other materials. National Association of the Deaf 814 Thayer Avenue Silver Spring, MD 20910 301-587-1788 National organization assisting the deaf to achieve their maximum potential through independent living and acceptance into the community. Protects the legal rights of deaf people, educates public and influences public policy, serves as an information clearinghouse, and offers special programs and camps. Publishes quarterly newsletter and various other materials. National Center for Stuttering 200 East 33rd Street New York, NY 10016 800-221-2483, 212-532-1460 Organization assisting families of young children showing early signs of stuttering and support for others who stutter. Provides information and treatment for children and adults. Publishes quarterly newsletter and annual review of published literature. National Information Center on Deafness Gallaudet University 800 Florida Avenue, NE Washington, DC 20002 202-651-5051, 202-651-5052 (Telecommunication Device for the Deaf) Information clearinghouse for the deaf. Provides information to the public and professionals on all aspects of deafness and hearing impairments, including deafness in children. Publishes a directory of programs and services available to deaf people. National Stuttering Project 4601 Irving Street San Francisco, CA 94122 415-566-5324 Organization for children and adults who stutter, their families, and speech-language pathologist. Provides information and referrals; seeks to educate public. Publishes monthly newsletter and various other print and audiovisual materials. Speech Foundation of America P.O. Box 11749 Memphis TN 38111 901-452-0995 Organization concerned with individuals having speech disorders. Encourages research on prevention and treatment of stuttering. Seeks to educate public, provides information and makes referrals. Publishes various materials. Hemophilia National Hemophilia Foundation The Soho Building 110 Greene Street, Suite 406 New York, NY 10012 212-219-8180 Foundation working to improve the quality of life for individuals who have hemophilia and related bleeding disorders. Provides support, serves as information clearinghouse on hemophilia, acts as advocate for increase social services, and supports research. Publishes quarterly newsletter and various other materials. Huntington's Disease Huntington's Disease Society of America 140 West 22nd Street New York, NY 10011-2420 800-345-4372, 212-242-1968 Organization for families affected by Huntington's disease. Provides information and makes referrals; supports research and operates the Brain Donor program. Publishes newsletter and various other materials. Hydrocephalus National Hydrocephalus Foundation Route One, River Road Box 210A Joliet, IL 60436 815-467-6548 Organization aimed at informing individuals affected by hydrocephalus and their families about services available to them. Provides information and makes referrals, maintains reference library, and publishes quarterly newsletter and various other printed and audiovisual materials. Hyperactive Children Center for Hyperactive Child Information, Inc. P.O. Box 66272 Washington, DC 20035-6272 703-920-7495 Organization interested in children with hyperactivity. Provides information on the medical and educational requirements of hyperactive children. Publishes and distributes brochures and other materials. Ileitis and Colitis National Foundation for Ileitis and Colitis 444 Park Avenue, 11th Floor New York, NY 10016 212-685-3440 Organization committed to exploring problems from and cure for ileitis and colitis. Sponsors research, supports mutual-support groups for individuals and their families, provides information and referrals. Publishes quarterly newsletter and various other materials. Immune Deficiency Immune Deficiency Foundation P.O. Box 586 Columbia, MD 21045 301-461-3127 Organization concerned with immune-deficiency diseases. Gathers and disseminates information concerning research and treatment; supports research. Publishes annual newsletter and various other print and audiovisual materials. Infant Loss National Sudden Infant Death Syndrome Foundation 10500 Little Patuxent Parkway, Suite 420 Columbia, MD 21044 301-964-8000, 800-221-SIDS 24 Hour Hotline Organization devoted to providing counseling and support to families who have lost children to SIDs. Encourages and supports formation of self-help groups and parent-to-parent contact; provides information and referrals. Publishes newsletter and various other materials. Pregnancy and Infant Loss Center 1421 East Wayzata Boulevard, Room 40 Wayzata, MN 55391 612-473-9372 Organization of parents who have suffered a miscarriage, stillbirth, or infant death. Provides information and referrals; encourages the formation of support groups. Publishes newsletter and various other materials. SHARE St. Elizabeth's Hospital 211 South Third Street Belleville, IL 62222 618-234-2415 (ext. 1430) Network of support groups for families who have lost a baby through early infant death, stillbirth, or miscarriage. Provides counseling, encourages support groups, maintains library and information about resources available for surviving parents and siblings. Publishes newsletter and various other materials. Kidney and Urologic Disease American Kidney Fund 6110 Executive Boulevard, Suite 1010 Rockville, MD 20852 800-638-8299, 301-881-3052 Organization interested in kidney problems. Provides information; supplies financial aid to qualified patients. Publishes pamphlets dealing with kidney diseases in children and various other materials. Cystinosis Foundation 17 Lake Piedmont, CA 94611 415-834-7897 Organization devoted to supporting families whose children have cystinosis. Seeks to educate public and medical professionals; supports research. Publishes quarterly newsletter and various other materials. National Association of Patients on Hemodialysis and Transplantation 211 East 43rd Street New York, NY 10017 212-867-4486 Organization of individuals with kidney diseases and their families. Supports and encourages formation of local mutual-support groups, provides information, offers special programs such as summer camps for children on dialysis; maintains directory of international dialysis centers. Publishes various materials. National Kidney and Urologic Disease Information Clearinghouse Box NKUDIC Bethesda, MD 20892 301-468-6345 Organization acting as an information clearinghouse for kidney and urological problems. Publishes various materials for medical professionals and public. National Kidney Foundation 2 Park Avenue, Suite 908 New York, NY 10016 212-889-2210 Organization for individuals with kidney disease, their families and medical professionals. Provides information and referrals, offers local groups for patient services, and operates an organ donor program. Publishes quarterly newsletter and various other materials. Lateral Sclerosis Amyotrophic Lateral Sclerosis Association 21021 Ventura Boulevard, Suite 321 Woodland Hills, CA 91364 800-340-2060, 818-340-7500 Organization supporting research for ALS. Provides information and makes referrals. Publishes newsletter and various other materials. Learning Disabilities Association for Children and Adults with Learning Disabilities 4156 Library Road Pittsburgh, PA 15234 412-341-1515 Organization for individuals with learning disabilities and their families. Seeks to educate public, encourages local support groups, provides special program information, and offers referral service. Publishes newsletter and other various materials. National Center for Learning Disabilities 99 Park Avenue, 6th Floor New York, NY 10016 212-687-7211 Organization interested in providing special programs for individuals with learning disabilities. Seeks to educate public; publishes resource guide. Orton Dyslexia Society 724 York Road Baltimore, MD 21204 800-222-3123, 301-296-0232 Organization of individuals concerned with the study, treatment, and prevention of dyslexia. Promotes research and knowledge share. Publishes newsletter and other various materials. Leukemia Leukemia Society of America, Inc. 733 Third Avenue New York, NY 10017 212-573-8484 Organization devoted to assisting individuals and their families cope with leukemia, lymphomas, and multiple myelomas. Provides financial aid, seeks to educate public, and publishes bimonthly newsletter and various other materials. National Leukemia Association 585 Stewart Avenue, Suite 536 Garden City, NY 11530 516-222-1944 Organization committed to fighting leukemia. Funds research; supplies financial aid to qualified leukemia patients. Liver Disease American Liver Foundation 998 Compton Avenue Cedar Grove, NJ 07009 800-223-0179, 201-857-2626 Organization for individuals with liver diseases and their families. Promotes research, education, and patient self-help groups. Operates organ donor program; provides network for parents with children affected by liver disease. Publishes newsletter and various other materials. Children's Liver Foundation 14245 Ventura Boulevard, Suite 201 Sherman Oaks, CA 91423 818-906-3021 Organization devoted to providing family support, education, and advocacy for children with liver diseases. Seeks to educate public, encourages research, and publishes quarterly newsletter and various other materials. Lung Disease American Lung Association National Headquarters 1740 Broadway New York, NY 10019 212-315-8700 Organization involved with lung diseases and related conditions. Provides information and referrals, seeks to educate public. Publishes various materials. Lupus Lupus Foundation of America 1717 Massachusetts Avenue, N.W. Washington, DC 20036 800-558-0121, 202-328-4550 Organization devoted to supporting lupus patients and their families by providing a network for patient information and service exchange. Gathers and disseminates information, supports research, seeks to educate public. Publishes various materials. Marfan Syndrome National Marfan Foundation 382 Main Street Port Washington, NY 11050 516-883-8712 Organization devoted to supporting, providing information and making referrals to individuals with Marfan syndrome and their families. Encourages research and family information exchange. Publishes quarterly newsletter and various other materials. Mental Health American Mental Health Fund 2735 Hartland Road, Suite 335 Falls Church, VA 22043 800-433-5959, 703-573-2200 Organization devoted to mental illness, educating public of warning signs and providing information on the needs for understanding and getting help. Supports research; publishes various materials. National Mental Health Association 1021 Prince Street Alexandria, VA 22314 703-684-7722 Organization acting as advocate for children with mental illnesses and devoted to improving care and prevention. Provides emotional support and guidance for families, supports community centers, educates public and influences government policy. Publishes various print and audiovisual materials. Mental Retardation Association for Retarded Citizens (ARC) P.O. Box 6109 Arlington, TX 76005 817-640-0204 Organization dedicated to the well-being of the mentally retarded. Develops employment opportunities, provides counseling and guidance, maintains library. Seeks to educate public and influence public policy and legislation. Publishes various materials. Mental Retardation Association of America 211 East 300 South Street, Suite 212 Salt Lake City, UT 84111 801-571-8011 Association dedicated to improving quality of life for the mentally retarded. Promotes group homes, seeks to educate public, and influence public policy and legislation; supports research. Missing & Exploited Children Missing Children of America P.O. Box 670-949 Chugiak, AK 99567 907-248-7300 Organization devoted to assisting in the location of missing children. Seeks to educate public on the importance of child identification packages; publishes various materials. National Center for Missing and Exploited Children 2102 Wilson Boulevard, Suite 550 Arlington, VA 22201 800-843-5678, 703-235-3900 Organization that works as a clearinghouse for parents and agencies searching for missing children. Seeks to influence public policy and legislation; publishes various print and video materials. Mucopolysaccharidoses or Mucolipidoses National Mucopolysaccharidosis Society 17 Kraemer Street Hicksville, NY 11801 516-931-6338 Organization devoted to patients having mucopolysaccharidoses or mucolipidoses and their families. Provides support, networking, public education; makes referrals and supports research. Publishes newsletter and various other materials. Zain Hansen M.P.S. Foundation 1200 Fernwood Drive P.O. Box 4768 Arcata, CA 95521 707-822-5421 Organization devoted to children with mucopolysaccharidoses and related disorders and their families. Grants financial aid, supports research, and serves as an information clearinghouse. Publishes quarterly newsletter and various other materials. Multiple Sclerosis National Multiple Sclerosis Society 205 East 42nd Street New York, NY 10017 212-986-3240 Organization serving individuals with multiple sclerosis and their families. Provides information, counseling and referrals; seeks to educate public; offers community services. Publishes quarterly magazine and various other materials. Muscular Dystrophy Muscular Dystrophy Association 810 Seventh Avenue, 27th Floor New York, NY 10019 212-586-0808 Organization devoted to muscular dystrophy and related neuromuscular diseases. Operates nationwide network of diagnostic, research, and treatment clinics. Provides special services and funding to patients and their families. Supports research, operates summer camps, seeks to educate public and influence public policy and legislation regarding the handicapped. Publishes quarterly magazine and various other materials. Nannies International Nanny Association P.O. Box 26522 Austin, TX 78755 512-454-6462 Organization of nannies, agencies, and nanny training schools. Maintains placement agencies directory. Neurofibromatosis National Neurofibromatosis Foundation 141 Fifth Avenue, Suite 7-S New York, NY 10010 800-323-7938, 212-460-8980 Organization providing individuals with neurofibromatosis and their families information on medical, social, and genetic counseling. Offers patient support, seeks to educate public, makes referrals, and publishes various materials. Osteogenesis Imperfecta Osteogenesis Imperfecta Foundation P.O. Box 14807 Clearwater, FL 34629-4807 813-855-7077 Organization of individuals with osteogenesis imperfecta and their families. Gathers and disseminates information, provides parent network, supports research, seeks to educate public. Publishes quarterly newsletter and various other materials. Osteoporosis National Osteoporosis Foundation 1625 Eye Street, NW, Suite 1011 Washington, DC 20006 202-223-2226 Organization of individuals concerned about and interested in educating the public about osteoporosis. Provides information and referrals, supports research, publishes quarterly newsletter and various other materials. Paget's Disease Paget's Disease Foundation, Inc. 165 Cadman Plaza East Brooklyn, NY 11201 718-596-1043 Organization of individuals with Paget's disease, their families, and medical professionals. Provides educational materials to patients, serves as an information clearinghouse, encourages research, seeks to educate public, makes referrals. Publishes newsletters and various other materials. Pediatric Association American Academy of Pediatrics PO Box 927 Elk Grove Village, IL 60007 708-228-5005, 800-433-9016 (nationwide), 800-421-0589 (in IL) The AAP is an organization of 44,000 pediatricians dedicated to the health, safety, and well-being of infants, children, adolescents, and young adults. The Academy develops policy, does extensive research, and provides numerous publications and audio-visual resources. Perinatal Health Care National Perinatal Association 101-1/2 South Union Street Alexandria, VA 22314-3323 703-549-5523 Organization interested in educating parents about perinatal health care. Provides information and makes referrals to the public. Publishes newsletter. Phenylketonuria (PKU) PKU Parents 8 Myrtle Lane San Anselmo, CA 94960 415-457-4632 Support organization for families who have children with phenylketonuria (PKU). Offers information, encourages exchange of experiences, publishes quarterly newsletter. Premature Infants Parent Care, Inc. 101-1/2 South Union Street Alexandria, VA 22314 703-836-4678 Organization devoted to parents of premature or high-risk infants. Encourages mutual support groups, maintains library, seeks to educate public. Publishes newsletter and other various materials. Parents of Prematures P.O. Box 3046 Kirkland, WA 98083 206-283-7466 Organization for parents of infants born prematurely or who have been hospitalized after birth. Encourages support groups, provides counseling and emotional support, publishes monthly newsletter. Psoriasis National Psoriasis Foundation 6443 SW Beaverton Highway, Suite 210 Portland, OR 97221 503-297-1545 Organization for individuals with psoriasis and their families. Offers physician referrals, supports self-help groups for parents, provides a Pen Pal Club for children, serves as an information clearinghouse. Publishes various materials. Rare Disorders National Organization for Rare Disorders P.O. Box 8923 New Fairfield, CT 06812 203-746-6518 Organization of individuals and health professionals interested in rare disorders. Compiles and disseminates information, makes referrals, and monitors availability of medicines for rare disorders under the Orphan Drug Act. Publishes quarterly newsletter. Reye's Syndrome National Reye's Syndrome Foundation 426 North Lewis P.O. Box 829 Bryan, OH 43506 800-233-7393, 419-636-2679 Organization devoted to families with children who have had Reye's syndrome. Serves as an information clearinghouse, encourages support groups, seeks to educate and encourage government funding of research, offers counseling. Publishes bimonthly newsletter and various other materials. Safety Consumer Product Safety Commission Washington, DC 20207 800-638-2772 Government agency dedicated to the safety of consumers. Advises parents of toy and furniture recalls; answers questions and inquiries; publishes numerous materials. National Child Safety Council 4065 Page Avenue P.O. Box 1368 Jackson, MI 49204-1368 800-222-1464, 517-764-6070 National council providing safety educational materials to parents, educators, and interested others. Publishes numerous materials geared towards children. National Safety Council 444 North Michigan Avenue Chicago, IL 60611 312-527-4800 Nationwide organization promoting safety in all areas of life. Seeks to educate public on accident prevention. Maintains library; publishes quarterly newsletter and various print and audiovisual materials. Scoliosis National Scoliosis Foundation, Inc. 93 Concord Avenue P.O. Box 547 Belmont, MA 02178 617-489-0888 Organization dedicated to educating the pubic of potential health problems associated with abnormal spinal curvatures. Encourages screening programs in schools, funds and develops early detection programs and treatment. Publishes semiannual newsletter and various other print and audiovisual materials. Skin Disorders Foundation for Ichthyosis and Related Skin Types P.O. Box 20921 Raleigh, NC 27619-09221 919-782-5728 Organization for individuals with ichthyosis and related skin disorders. Encourages support groups, gathers and disseminates information, seeks to educates public. Publishes bimonthly newsletter. Sleep Disorders American Narcolepsy Association P.O. Box 1187 1139 Bush Street, Suite D San Carlos, CA 94070 800-222-6085, 415-591-7979 Organization of individuals suffering from narcolepsy or interested in sleep disorders. Supports self-help groups, provides information and referrals, seeks to educate public. Publishes quarterly newsletter and various other materials. Spina Bifida Spina Bifida Association of America 1700 Rockville Pike, Suite 540 Rockville, MD 20852 800-621-3141, 301-770-7222 Association encouraging the care, treatment, and education of individuals with spina bifida and their families. Supports and encourages formation of local chapters, seeks to educate public, aids in the arrangement of adoptions; supports research on causes, treatments and technical aid. Publishes newsletter and various other materials. Spinal Cord Injury National Spinal Cord Injury Association 149 California Street Newton, MA 02158 800-962-9629, 617-964-0521 Organization serving as an information clearinghouse for individuals interested in spinal-cord injuries and self-help for patients and families. Makes referrals, provides special services, publishes newsletter and various other materials. Spinal Muscular Atrophy Families of S.M.A. P.O. Box 1465 Highland Park, IL 60035 708-432-5551 Organization of individuals concerned with spinal muscular atrophy and other related diseases. Provides referral service; maintains resource library, offers family network and support. Publishes newsletter and various other materials. Tay-Sachs Disease National Tay-Sachs & Allied Diseases Association 385 Elliot Street Newton, MA 02164 617-964-5508 Organization devoted to families with children suffering from Tay-Sachs or related diseases. Supports formation of self-help groups, provides information and education, makes referrals. Publishes newsletter and various other materials. Terminally Ill Children Children's Hospice International 1101 King Street, Suite 131 Alexandria, VA 22314 800-242-4453, 703-684-0330 Organization providing a support network for families of seriously ill children and families who have lost a child. Serves as an information clearinghouse. Make-a-Wish Foundation of America 4601 North 16th Street, Suite 205 Phoenix, AZ 85016 602-234-0960 Organization dedicated to granting a wish to terminally ill children under the age of eighteen. Publishes quarterly newsletter and various other materials. Starlight Foundation 10100 Santa Monica Boulevard, Suite 785 Los Angeles, CA 90067 213-208-5885 Organization dedicated to granting a wish to terminally or chronically ill children. Sunshine Foundation 4010 Levick Street Philadelphia, PA 19135 215-335-2622 Organization dedicated to granting a wish to terminally or chronically ill children and their families. Trisomy 18/13 and Related Disorders Support Organization for Trisomy 18/13 and Related Disorders 5030 Cole Pocatello, ID 83202 208-237-8782 Support organization for families who have children with trisomy 18/13 disease or related disorder. Publishes bimonthly newsletter and various other materials. Turner's Syndrome Turner's Syndrome Society York University, Administrative Studies 4700 Keele Street, Room 006 Downsview, Ontario M3J 1P3 Canada 416-736-5023 Organization supporting families of children with Turner's syndrome. Gathers and disseminates information, seeks to educate public, makes referrals. Publishes quarterly newsletter and various other print and audiovisual information. Twins & Triplets National Organization of Mothers of Twins Clubs, Inc. 12404 Princess Jeanne, N.E. Albuquerque, NM 87112-4640 505-275-0955 Network of parents with twins and other multiple births seeking to educated others in aspects of raising twins and encouraging the individuality of each twin. Aims to educate public, maintains library, and aides research. Triplet Connection 2618 Lucile Avenue P.O. Box 99571 Stockton, CA 95209 209-474-3073 Network of mutual-support groups for families expecting and raising triplets. Assists parents-to-be, encourages sharing of information and experiences, operates Tender Hearts program for mothers of lost ones. Publishes newsletter. Visually Impaired American Council of the Blind 1010 Vermont Avenue, NW, Suite 1100 Washington, DC 20005 800-424-8666, 202-393-3666 Organization for people who are blind or visually impaired, their families, and interested others. Provides information and makes referrals. Seeks to educate public and influence public policy and legislation; records talking books and maintains library about vision problems. Evaluates and consults on consumer products, publishes various materials in large type, recording, and braille. American Foundation for the Blind 15 West 16th Street New York, NY 10011 800-AFBLIND, 212-620-2000 Organization for the blind or visually impaired, their families, and professionals who work with them. Provides information and referrals, encourages family self-help programs, maintains library and National Consultant on Early Childhood. Publishes materials in large type, recording, and braille, as well as basic guide to services for the blind from birth on. Blind Children's Center P.O. Box 29159 4120 Marathon Street Los Angeles, CA 90029 800-222-3566 (except CA), 800-222-3567 (CA only), 213-663-2153 Organization aimed at parents of vision-impaired children. Publishes various materials. Blind Children's Fund 230 Central Street Auburndale, MA 02166-2399 617-332-4014 Organization aimed for parents and professionals working with visually impaired infants and children up to age seven. Publishes materials for teaching and stimulating children of different ages and levels of impairment. International Institute for Visually Impaired, Ages 0-7 1975 Rutgers Circle East Lansing, MI 48823 517-332-2666 Organization consisting of parents and teachers of vision-impaired children from birth to age seven. Operates information center for parents and teachers of visually impaired preschoolers; offers consulting and workshops. Publishes quarterly newsletter and various other materials. National Association for Parents of the Visually Impaired P.O. Box 180806 Camden, NY 13316 800-562-6265, 315-245-3442 Organization devoted to supporting the families of visually impaired children. Seeks to educate public and influence public policy, provides information and support, conducts training and workshops. Publishes various print and audiovisual materials. National Association for Visually Handicapped 22 West 21st Street New York, NY 10010 212-889-3141 Organization functioning as an information clearinghouse. Provides services for the visually impaired, offers counseling to parents of partially seeing children, maintains library of large-print materials, and publishes various materials, including large-print newsletters for children and adults. National Society to Prevent Blindness 500 East Remington Road Schaumburg, IL 60173 800-221-3004, 312-843-2020 Organization concerned with blindness and preserving sight. Provides information to public about proper eye care, eye diseases, and treatments; supports research and operates screening programs. Publishes various materials. Parents and Cataract Kids 179 Hunter's Lane Devon, PA 19333 215-293-1917 Organization consisting of parents whose children are affected by cataracts. Promotes formation of support groups and provides networking services. Publishes quarterly newsletter. Wilson's Disease Wilson's Disease Association P.O. Box 75324 Washington, DC 20013 703-636-3014, 703-636-3003 Organization of individuals with Wilson's disease or Menkes' syndrome and their families. Supports and encourages family-to-family contact, provides information, makes medical referrals, and provides limited financial aid. Publishes quarterly newsletter and various other materials.