Document 0971
 DOCN  M9620971
 TI    Guidelines for counselling adolescents with haemophilia and HIV
       infection and their families.
 DT    9602
 AU    Miller R; Social Worker/Family Therapist Haemophilia Centre, AIDS;
       Counselling Co-ordinator Royal Free Hampstead NHS Trust, London,; UK.
 SO    AIDS Care. 1995;7(3):381-9. Unique Identifier : AIDSLINE MED/96068005
 AB    Adolescents, poised between childhood and adulthood, and their families
       have many challenges. It is timely to review what these are for those
       with haemophilia, HIV and HCV (hepatitis C) infection in the 1990s. All
       three conditions are life long, life threatening and incurable. The main
       dilemmas facing these families are how, when and who should tell the
       adolescent about HIV and HCV; getting the right balance between the
       realities of the infections, the best interests of the adolescent and
       the risks of transmission of infection to others. HIV interrupts the
       adolescent's normal life stage expectations and development. How health
       carers relate to the adolescent is influenced by the split
       responsibilities to the adolescent and his parents as well as to others
       who might be at risk of infection. Clarity about the issues related to
       medical treatment and care, disease progression, and enhancing skills in
       dealing with families and young people are ways of helping to maintain
       hope in the face of life threatening illnesses for all concerned.
 DE    Adolescence  *Counseling  *Family Therapy  Female
       Hemophilia/*PSYCHOLOGY  Hepatitis C/PSYCHOLOGY/TRANSMISSION  Human  HIV
       Infections/*PSYCHOLOGY/TRANSMISSION  Knowledge, Attitudes, Practice
       Male  Parenting/PSYCHOLOGY  Patient Care Team  Patient Education
       Personality Development  Practice Guidelines  *Sick Role  Truth
       Disclosure  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
       protected by Copyright Law (Title 17, U.S.Code).