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1996-02-26
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Document 0977
DOCN M9620977
TI Reliance by gay men and intravenous drug users on friends and family for
AIDS-related care.
DT 9602
AU Johnston D; Stall R; Smith K; Joint Program in Medical Anthropology,
University of California,; San Francisco, USA.
SO AIDS Care. 1995;7(3):307-19. Unique Identifier : AIDSLINE MED/96067999
AB A group of gay-identified men (n = 81) and intravenous drug users (n =
88) diagnosed with AIDS in San Francisco were interviewed regarding
their use of friends and family to meet their care needs. Analytic of
quantitative data revealed that gay men relied more than did IDUs on
friends for care. Neither group relied primarily on their families for
care. Analysis of the qualitative data identified five primary barriers
to care. First, many people with AIDS are not accustomed to asking for
help and often avoid it when possible. Second, the social stigma
surrounding AIDS sometimes leads to isolation. Third, some people with
AIDS have kin with health problems of their own, thereby sometimes
compromising this potential source of care. Fourth, the AIDS epidemic
has devastated identifiable sub-populations, leaving surviving members
of these groups emotionally exhausted and sometimes unable to provide as
much help as they might have liked. Finally, some respondents choose to
voluntarily cut themselves off from 'supportive' relationships that they
perceive to be destructive now that they have been diagnosed with a
fatal illness. Professional care providers and health care planners
should be aware of dynamics within informal care networks of people with
AIDS that may leave patients without necessary care.
DE Acquired Immunodeficiency Syndrome/*PSYCHOLOGY/THERAPY Adult
Caregivers/*PSYCHOLOGY Family/PSYCHOLOGY Female Health Services
Accessibility Homosexuality, Male/*PSYCHOLOGY Human Male Patient
Acceptance of Health Care Patient Care Planning Personality Assessment
Prejudice San Francisco Sick Role Social Isolation *Social Support
Substance Abuse, Intravenous/COMPLICATIONS/*PSYCHOLOGY Support,
Non-U.S. Gov't Support, U.S. Gov't, P.H.S. JOURNAL ARTICLE
SOURCE: National Library of Medicine. NOTICE: This material may be
protected by Copyright Law (Title 17, U.S.Code).