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1996-02-26
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Document 0971
DOCN M9620971
TI Guidelines for counselling adolescents with haemophilia and HIV
infection and their families.
DT 9602
AU Miller R; Social Worker/Family Therapist Haemophilia Centre, AIDS;
Counselling Co-ordinator Royal Free Hampstead NHS Trust, London,; UK.
SO AIDS Care. 1995;7(3):381-9. Unique Identifier : AIDSLINE MED/96068005
AB Adolescents, poised between childhood and adulthood, and their families
have many challenges. It is timely to review what these are for those
with haemophilia, HIV and HCV (hepatitis C) infection in the 1990s. All
three conditions are life long, life threatening and incurable. The main
dilemmas facing these families are how, when and who should tell the
adolescent about HIV and HCV; getting the right balance between the
realities of the infections, the best interests of the adolescent and
the risks of transmission of infection to others. HIV interrupts the
adolescent's normal life stage expectations and development. How health
carers relate to the adolescent is influenced by the split
responsibilities to the adolescent and his parents as well as to others
who might be at risk of infection. Clarity about the issues related to
medical treatment and care, disease progression, and enhancing skills in
dealing with families and young people are ways of helping to maintain
hope in the face of life threatening illnesses for all concerned.
DE Adolescence *Counseling *Family Therapy Female
Hemophilia/*PSYCHOLOGY Hepatitis C/PSYCHOLOGY/TRANSMISSION Human HIV
Infections/*PSYCHOLOGY/TRANSMISSION Knowledge, Attitudes, Practice
Male Parenting/PSYCHOLOGY Patient Care Team Patient Education
Personality Development Practice Guidelines *Sick Role Truth
Disclosure JOURNAL ARTICLE
SOURCE: National Library of Medicine. NOTICE: This material may be
protected by Copyright Law (Title 17, U.S.Code).